An issue recently has been brought up to me on Facebook, and I feel very strongly about it, and i know other people with Ulceritive Colitus, Crones, and other Intestinal disorders can surely agree.
The issue is when people ask you, in a semi-polite, rarely actually curious way "What are you doing now with your life?"
This can come from old teachers to classmates to friends to etc etc, but it still is touchy either way.
Right now in this economy, even given good education and good health--guess what's happening? Don't be a douchebag. Look at Salon.com, look at CNN, look at BBC for news. No one's got fucking jobs, asshole. That's why the economy is tanking, along with a billion other things, so don't judge all of us who can't even find work at a McDonalds.
Secondly, and most importantly, whether the "normals" understand it or not, battling a Chronic illness, at most times, is nearly a full-time job. You think of us as lazy, maybe you think we just lie around watching soap-opera's all day. To this notion, I give a hearty FUCK YOU IN THE FACE. ------>
The anguish of just trying to nibble food and then having to run to the bathroom throughout the day because of it, because of your condition, is heartbreaking. Curling up on the floor in pain, weeping because it seems the stabbing in your guts will never stop, wishing yourself into death because of it--This is no life. This is just anguished continuing suffering. If everyone "normal" could remember back to the time they had the flu maybe, or when they ate someting horrible: well, it's like that 24-7 times 1,000. Every. Single. Goddamned. Day for people trying to battle this shit. And surgery? It fixes some things--even alot! Don't get me wrong! But afterward, your life isn't magically changed into a "normal" person's life.
My friend is a First Lieutenant in the army, and every summer he vists me. So summer 2010, he took me out in his car, saying we were going dancing. Nope. We went to his friend's house, where I met this tall deep-voiced shy young man with a scruffy beard and an Austrian accent, and... and I had to meet his mom. It was fine, randomly having a parent crash the party of three young kids getting-together, but she kept grilling me about why I wasn't in this or that University, why I was a failure for not having this or that job, and didn't really like that I told her I finished most of my University classes in accelerated courses while I was still in High school, and, in fact, graduated from my Prep School a year early because of my grades. (I had a disease that kept me out of sports and parties and extracurricular activities of all kinds. Of course I studied hard. It was all I had :( :(
In front of my Lieutenant friend and this new tall boy, she kept grilling and grilling me embarrassingly, not caring that I was obviously uncomfortable with the questions, just wanting to shame me for not going the path she thought everyone should go out of tradition.
Go ahead and judge me, cunt. Just go ahead.
Anyway, this bitch became my mother in law, as I married the soft-spoken kind tall man, but she never once stopped judging the shit out of me. She works in the health-care field too, so you'd think she'd be a little more sensitive, but no. Every single chance she'd gotten, she's told her son, my hubby, to get away from me, that I was just a sickly piece of crap that would drag him down, that with my illness, I was worthless, that I would never provide her with grandchildren that I would never be able to hold a job, and so much more, over and over, where even the father, when I told them we were getting married, he was so disgusted he even mimed that he was going to vomit.
My hubby's family is so unlike him, it's amazing he came from them, but they have truly and honestly hated me from day one, and even more so once they found out how ill I was. Even through my surgeries, they kept trying to get my Mr B to leave me, to just walk out the hospital room where I was, to just leave and never come back.
To this, I say: I am not worthless. I have many talents, I have a big heart, I have a lot of love to give that obviously you lack you cunt asshole. I am a human being. I am a daughter, a wife, a sister, a writer, a musician, a singer, an artist, an animal protector and love-love-lover!!, I am so many things that your puny mind couldn't even conceive the wealth of all the love I have to give.
Now I can talk a lot of shit in writing, sure, but I'm actually pretty soft-spoken myself, and I don't say hurtful things to other people. I just don't. I haven't acted like a good Buddhist in my writing. It's angry and full of cuss-words many times, but I know in person, these people that ask you thinks that hurt your feelings, or people that even outright mock you for your conditon, they are just confused, they are just saying things offhandedly without really "thinking" about it. Sometimes they are scared, too. Sometimes they feel like they can't handle the seriousness of what has happened to you. Sometimes they feel dumb that they don't understand.
So to these idiots, to these small-minded dumb superficial people, just shrug. Give your response with a flightly smile. Pretend you don't care. Say "Oh you know, just hanging around" "Just surviving" or change the subject quick to the weather. If they keep pressing on, just keep telling them, "Oh odd-jobs here and there" "Just doing what I can to get by" and try not to talk about your illness at all, if you can, as it just confuses the tiny little rat-people.
I'm sorry for the rant, but i have lived with these questions so much for so long, and though I have mostly gotten good at giving vague-passing answers, sometimes I still get angry at them.
How do YOU deal with these kinds of questions??
The issue is when people ask you, in a semi-polite, rarely actually curious way "What are you doing now with your life?"
This can come from old teachers to classmates to friends to etc etc, but it still is touchy either way.
Right now in this economy, even given good education and good health--guess what's happening? Don't be a douchebag. Look at Salon.com, look at CNN, look at BBC for news. No one's got fucking jobs, asshole. That's why the economy is tanking, along with a billion other things, so don't judge all of us who can't even find work at a McDonalds.


In front of my Lieutenant friend and this new tall boy, she kept grilling and grilling me embarrassingly, not caring that I was obviously uncomfortable with the questions, just wanting to shame me for not going the path she thought everyone should go out of tradition.
If I had known her better, I would have turned to her and been like "Hey lady? Guess what. I've struggled with a birth defect my entire life that has left me basically incapacitated for over 15 or 19 years. Sound Fun? I've been going to hospitals once a month since I was 9. For surgeries, for adjustments on my TLSO back-brace, for tests, for cultures, for god knows how many things. I've spent weeks at Mayo Clinic in Rochester, MN, where they starved me for a month on nothing but clear liquids so they could run a damaging banister of tests on me. My heart stopped. I went into cardiac arrest when I was 18 after all these tests. I was lucky to survive, but I'm still not okay. I have to take medication for my heart every day. I can barely eat anything I want. I still struggle with just daily living that you take entirely for granted. So yeah--I don't have a job right now. I'm not at a University. And yeah! I'd be lucky to just live like a bum even--maybe they aren't in constant agonising pain that drives you to think the only solution is suicide. So FUCK YOU. FUCK YOU IN THE FACE, AND FUCK YOU IN THE HOLE I'M GOING TO POUND THROUGH YOUR CHEST IN MY FEROCIOUS ANGER."
Go ahead and judge me, cunt. Just go ahead.
Anyway, this bitch became my mother in law, as I married the soft-spoken kind tall man, but she never once stopped judging the shit out of me. She works in the health-care field too, so you'd think she'd be a little more sensitive, but no. Every single chance she'd gotten, she's told her son, my hubby, to get away from me, that I was just a sickly piece of crap that would drag him down, that with my illness, I was worthless, that I would never provide her with grandchildren that I would never be able to hold a job, and so much more, over and over, where even the father, when I told them we were getting married, he was so disgusted he even mimed that he was going to vomit.
My hubby's family is so unlike him, it's amazing he came from them, but they have truly and honestly hated me from day one, and even more so once they found out how ill I was. Even through my surgeries, they kept trying to get my Mr B to leave me, to just walk out the hospital room where I was, to just leave and never come back.
To this, I say: I am not worthless. I have many talents, I have a big heart, I have a lot of love to give that obviously you lack you cunt asshole. I am a human being. I am a daughter, a wife, a sister, a writer, a musician, a singer, an artist, an animal protector and love-love-lover!!, I am so many things that your puny mind couldn't even conceive the wealth of all the love I have to give.
Now I can talk a lot of shit in writing, sure, but I'm actually pretty soft-spoken myself, and I don't say hurtful things to other people. I just don't. I haven't acted like a good Buddhist in my writing. It's angry and full of cuss-words many times, but I know in person, these people that ask you thinks that hurt your feelings, or people that even outright mock you for your conditon, they are just confused, they are just saying things offhandedly without really "thinking" about it. Sometimes they are scared, too. Sometimes they feel like they can't handle the seriousness of what has happened to you. Sometimes they feel dumb that they don't understand.
So to these idiots, to these small-minded dumb superficial people, just shrug. Give your response with a flightly smile. Pretend you don't care. Say "Oh you know, just hanging around" "Just surviving" or change the subject quick to the weather. If they keep pressing on, just keep telling them, "Oh odd-jobs here and there" "Just doing what I can to get by" and try not to talk about your illness at all, if you can, as it just confuses the tiny little rat-people.
I'm sorry for the rant, but i have lived with these questions so much for so long, and though I have mostly gotten good at giving vague-passing answers, sometimes I still get angry at them.
How do YOU deal with these kinds of questions??