Wednesday, May 9, 2012


I am currently in the middle of a writing contest after months of doing my husbands extensive homework with him (he's such a perfectionist that it cripples his ability to accomplish things:/) and FINALLY  the corset people had me in again for another fitting. (this is also after traveling cross-country and over into another country with our belongings in a trailor with my father-in-law ohgodIalmost died blagghrhrsjvjnnbm ....

Anyway. Here is a picture of a buffalo-bison statue somewhere in south or north dakota i took from the car window during our travels.

What the fuck are you doing, bison? Just hanging out there all giant and shit on top of that hill. Scaring little children and old ladies. What the hell? Who do you think you are?

Why is there a giant cow here? Just because.


What the hell is this landscape, I don't even...

Compared to the flat icy landscape of MN, this is alien land. Whhhhaaaaaaat the fuck.

And on to the corset pics!

You see, for my ileo, as I intend to be a constant wearer, my peeps there are putting in a "panel" a little hook-clasp area over my ileostomy so I can have easy access to the bag whenever need be, which, lets be honest, in pretty constant. I'm always checking it and fiddling with it, especially as my wafer just isn't sticking right--totally need new type of bags... hm...

In these pics I am looking at lace trim, and the area down to the right side of my hip, where my ileo is, is actually cut up a lot higher than normal for my ileostomy. That's where the panel-thing will go. Also, it's not really pressing down on my rosebud ileostomy either.
I have a lot more to say about Gastro Parisis and ligaments holding up the organs dropping, but that's not ileo-related, and I try to keep this blog pretty ileo-centred. But perhaps I shall tell you of my struggles with this parisis, and the ikelihood of getting such a disease after many abdominal surgeries, one day.
One day.


  1. It's so pretty! I could never wear anything with that much shaping. My Elizabethan corset only reduces about an inch, and it causes rib pain. :(

    And I've joined you in the land of pelvic floor disorders. Rectal massage nearly KILLED me today. I'm so high on narcotics now-- full body spasms for hours afterwards. I'm headed for electro-stimulation as soon as my sensor gets ordered in. Oh boy, the excitement!! :( Stupid levator syndrome. Don't we have enough wrong with us already???

  2. Oh-- I know exactly what you're talking about---poor girl! Yeah, right now I can't wear anything contricting around my waist, but I hope one day I'll be able to wear my corset on a more full-time basis. right now, I just don't have the physical maean within me to be succesful, much less vagely attractive. It's all a struggle to just live every single day, aand in that I mean every single minute of every single day for the last 8 months or so. That also elxplains why I haven't updated. But few will read this comment or know, besides you. I could barely eat more than a couple ounces of food at a time: how are you doing with that? Have you ever had a supplim3ent like Ensure?


  3. I actually haven't had any problems eating. Because my colitis was sooooo bad before the surgery, things seem so much better now. I've been hospitalized for one obstruction right after my surgery, and I think I've had a few more partial ones since then, but they usually cleared within an hour or two of the pain starting. I've been pretty lucky that the upper end of my digestive system seems to like me okay.
    I do make smoothies with protein powder, but that's more just because I don't eat enough in general. I have a crazy fast metabolism and I need about 3000 calories a day to maintain my weight.
    Anyway, I'm doing a colon cancer charity run in the morning, so I need to crash.